![]() Mariah Kelly, Patient Advocacy Director at Pfizer, helped to design the survey using an app that was co-created by Pfizer and Qualtrics. His team’s work on that survey will, indeed, help to educate others. “It makes me feel better to really get that message out and educate people about my health and how they can help.” “I feel empowered when I can tell my story about how I'm living with an illness that potentially could put me down or could slow me down,” says Lewis. Recently, Lewis, his colleagues at Sick Cells, and other patients with sickle cell disease had an opportunity to share their experiences by collaborating on a patient preference survey with Pfizer. 1,2 In sickle cell disease, red blood cells resemble a sickle rather than a disc and can block blood flow, causing pain and damage throughout the body. “It’s definitely 365 for me,” he says.Īs a program coordinator with Sick Cells, a sickle cell disease advocacy organization in Washington, D.C., Lewis regularly educates people about what it’s like to live with this disease-a rare, inherited condition, predominately (but not exclusively) impacting Black and Hispanic people. Even on days without pain, he worries about his future and the health conditions that might arise. ![]() Some days, the pain from the blood disorder hits him hard. ![]() Research and Business Development PartnershipsĬory Lewis has sickle cell disease.Unleashing the next wave of scientific innovations
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